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CIICA UPDATE: 24听NOVEMBER听2022

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Find below the latest update from CIICA
CIICA UPDATE: 24听NOVEMBER听2022
A LOT IS HAPPENING! PLEASE SHARE
CIICA’S LATEST RESOURCE:
COCHLEAR IMPLANTS FOR DEAF CHILDREN

Our latest resource, with EUROCIU, is a much needed information paper on Cochlear Implants and Deaf Children, which we launched at EUROCIU听 in Rotterdam.
It has up to date information on the impact of hearing loss and deafness and on cochlear implantation in children. It emphasises the importance of early implantation and the need to think about lifelong services.
Go to听听 to download your copy and share.
Translations:听If you want to translate please let us know – already people have started on Spanish, Romanian, Finnish, Czech. We will help to put it in the same format but you can put your logo on. Email [email protected]
NEXT CIICA LIVE:
FROM OUR GLOBAL ADULT SURVEY:
DELIVERING LIFELONG SERVICES?

WEDNESDAY 30 NOVEMBER: 19:00 UK;听听20:00 CET;听 14:00 EST; 11:00 PST; Thursday 1 Dec: 06:00 AEDT; 08:00 NZ听

Thanks for听the great response to our adult survey,听and the next CIICA LIVE will look at the themes which are emerging. What did people say they want in CI services?

Issues in this CIICA LIVE include听funding, decision making, life-long care, managing the technology,听peer group roles,听and counselling.
Our speakers are from across the globe: Stuart McNaughton, UK, Connie Myer, Canada, Fatema Jagmaag, India, Hernan Spotti, Argentina, Kathryn Chlosta, Netherlands, and Carole Willans, Canada.

Full programme at:听听 听Register here:听

Please听 share the invitation with your colleagues, friends and family

 
EuroTrak Reports
Unacceptable听levels of awareness of CI in UK, France and Germany
What are we doing about it?听
EuroTrak reports, established听by EHIMA听to survey countries about hearing aid useage and awareness, have recently included useful questions on CI awareness. We reported on France and Germany – and UK is little better.
Have a look at the reports on UK, Germany and France and听see how little awareness there is even in high income countries听of cochlear implantation. For example in UK:
In the UK, 41% of the population haven’t heard of CI
Only 30% of HA owners with severe/profound HL have been informed about CI by medical professional.
This is unacceptable –
Go to for the detail and use it in your advocacy work!
LIVING GUIDELINES PROJECT
4TH CIICA CONVERSATION:WHAT OUTCOMES ARE IMPORTANT TO USERS?听听

The Living Guidelines Project aims to improve access to CI for adults, and quality of care. A huge literature review has been undertaken to provide an evidence base, and CIICA members are contributing by giving their views in CIICA CONVERSATION sessions. The fourth – on Dec 12th @ 20.00 UK time听will consider the question: “听which outcome measures are most meaningful to patients to assess for improvement with CI?”
This is a great opportunity to have user input into these important Guidelines – the CONVERSATION will be led by our Chair, Leo De Raeve, and CI users can register at听听听PLACES LIMITED.听
For more information go to听

 
听ESPCI 2023: CALL FOR ABSTRACTS OPEN
CIICA WILL BE THERE – WILL YOU?
European Symposium on Paediatric CI began in Nottingham in 1992 and in 2023 will be in Rotterdam. It is always a really interactive and inspiring meeting – and in Rotterdam will be the first live meeting since 2019 in Bucharest. The exciting and inclusive topics:

  • Hearing and the developing brain
  • Novel implants, therapies and fitting
  • Growing up with CI
  • Sustainable and Green

What will you contribute? Go to听听to submit or register. See you in this exciting city!
听OUR NEW RESEARCH ROUNDUP
Brian Lamb has pulled together another really useful Research Roundup – recent papers useful for advocacy work. Celebrating one million CI go to
听 to read听Fan-Gang Zeng’s article, Celebrating the one millionth cochlear implant.听

The Research Roundup also covers Health Literacy, Changing Guidelines and Cognitive Decline. Brian summarises the papers and gives points for policy work. Go to听
听WORLD HEARING FORUM MEETS AGAIN
WORLD HEARING DAY 2023:
EAR AND HEARING CARE FOR ALL
听The Core Group of the World Hearing Forum听met again at WHO in Geneva for the first time since 2019.听 A lot to catch up on!
Do join the forum at听听
World Hearing Day 2023 – EAR AND HEARING CARE FOR ALL.听Plan your day听3 March 2023 –听and go on the website for the many resources to help you.听
Make Listening Safe:听听an amazing campaign – go to听听for many resources.
One billion young people at risk of hearing loss:
THE IMPACT OF THE PANDEMIC:
MEMBERS’ VIDEOS AVAILABLE听
Our members have made听 excellent short videos of the impact of the pandemic –听If you missed them – have a look to see what you have missed!听 These videos are really helpful resources for advocacy work. Go to听听They are really useful resources for your advocacy work.
听Welcome to new members who have joined us recently! Send us your news, events and resources
[email protected]